NorCalBDF and Your Personal Information
Northern California Bleeding Disorders (NorCalBDF) collects personal information from its community members in order to communicate about events, activities and services. Our primary purpose for collecting this information is to contact you regarding programs such as Camp Hemotion, Family Education Day, The Female Factor and others. We take our responsibility to protect your personal information seriously and work constantly to improve our systems and processes including communicating our information protection policies to all relevant parties.
Question: What information does NorCalBDF collect?
Answer: We primarily collect contact information such as name, address, phone number, email and the like. Additionally, we collect information regarding bleeding disorder types and your community connection (E.g. Parent, carrier, sibling, etc.). This helps us focus our communications to you. It provides NorCalBDF with an accurate census of the community. It also helps make sure that we don’t bombard your eight-year old with requests for donations or invite your grandpa to our youth camp. This general contact information resides in our database.
Question: Does the Foundation collect medical records or data?
Answer: NorCalBDF does not collect or maintain individual medical records of any kind for use in day-to-day business.
Question: Who has access to my personal information?
Answer: NorCalBDF does not sell your personal information to any organization and uses information for the purpose of contacting you about events and activities. NorCalBDF also receives advertising revenue from industry partners who may want to send marketing materials to community members on our mailing list. In such cases, NorCalBDF staff and/or volunteers prepare the mailing. Your information is never provided to any company or organization. NorCalBDF can only be successful with the help of our many volunteers. We recognize that some of our volunteers also work in industry. For that reason, all volunteers are required to sign a Code of Conduct. This clearly spells out that any contact information can ONLY be used in the course of conducting specific business. It cannot be collected or kept by any volunteer, or used in any way, or at any other time or location. NorCalBDF has a zero tolerance policy for violations of our policy and will investigate reported violations. For example, volunteers from one of our programs such as Camp Hemotion or Family Camp may help us get the word out regarding upcoming activities. NorCalBDF also utilizes volunteers for specific community outreach programs.
